Interesting New-NEW Diagnosis

Well this threw me for a bit of a loop this morning. Right after my work out session with my trainer, my cell phone rang. I NEVER bring my cell phone into the gym, so that I had it with me was strange to begin with.

Anyboob, it was the lady who had done the psychological testing for M, calling to tell me that the diagnosis was going to be different...not PDD-NOS, but Asperger Syndrome. She said that the rating scale I filled out when we saw her a couple weeks ago pretty much cemented the Aspergers diagnosis, but I guess at the time I talked to her last week and got the PDD-NOS dx, she hadn't factored that in.

I'm not mad that the diagnosis changed, just a little taken off guard. I did a lot of research this past week on PDD-NOS to see what therapies would be correct and also found a disorder that is not in the DSM, but seems to fit M very well. It's called MCDD - Multiple Complex Developmental Disorder. Pubmed and I are now besties...I can't tell you how many articles and abstracts I printed about it and related AS disorders.

So now I feel like I'm back in the same place I was last week...new diagnosis, different therapies (maybe...) and still needing to find a professional who deals with ASD kids.

The other thing is that though she doesn't think M has a thought disorder currently, she told me that we need to watch that as he ages. She thinks many of his elaborate stories that he comes up with are meant to help him deal with his anxiety, so they aren't a thought disorder per se.

I have a few things I want to research:

• stimming vs tics
• therapies for PDD-NOS vs Aspergers
• look back at M's medical records and determine if he had any language or communication delays (or any other delays, for that matter)

I'm sure there are other things, but I'll write them down as I come to them.

Never a dull moment, huh? :D